Hi gorgous ladies
Meet Amity, below is her Endo story and she just couldnt wait to share it with you all!
Happy reading xxx
My name is Amity and I’m from the South West of WA, I wouldn’t say living the normal life of any other but this page has inspired me SO much recently I felt the urge to share my own story, it’s so important to me that people get understanding about endo and continue to raise much needed awareness
Firstly, I want to start by saying- ladies! After reading your stories for those of you who have been going through this for years and years, I salute you! Down on my hands and knees! I have had problems for just over a year and I don’t know how anyone manages years of this!
My story starts when I moved out of home. No, not like any regular teenager, but leaving to get away from parents, who lets just say should not be so lucky as to have that title. I’d been spending A LOT of time with my best friend and her family, so much that they’d become my own family and I moved in with them. It was shortly after this when it all began. January/February last year I had awful heavy periods that just didn’t stop! Lucky for me my new mum was a nurse, praise lord she could take care of me but told me everyday she thought I needed to go to a doctor.
No way. I hated doctors and the thought of going to one gave me EXTREME anxiety. One night I had a pain attack so bad the next day I was booked in for a doctors appointment, my own choice. My first visit to the doctor had me put on some pain medication and given a blood test to check my iron levels. It was from then one I was to keep going back every week or so. My iron was low, due to blood loss, so I was put on iron tablets to go with the 15 other or so medications o had been put on. At that point I was a mess, I hated doctors, I hated needles and I hated swallowing pills and all of a sudden I had to face all three without warning. I did so for months before I was referred to a specialist, who lets say was not my favourite person. She told me it was pretty much ‘all in my head’ and she could ‘give me an operation but she almost guaranteed there’d be nothing’.
An operation I had. Laparoscopy and hysteroscopy indeed came back with nothing and my six week checkup with no results yet still in pain she said, quote, ‘throw all your pills in the ocean and do nothing’. Furious. Pain was still an everyday thing for me and coping I was not. I stayed with the same doctor for months who kept trailing me on new pills before they told me about his wonderful injection. They’d give it to me and it’d last 3 months. 3 months of no pain and no period, how could I turn that down? Even with my fear of needles I had the damn thing. The side effects I got from this ‘Depo Provera’ included hot flushes, migraines so bad I was hospitalised, burning rashes that looked like I’d got third degree burns, aching legs, just to scratch the surface. And all this came about EVERY SINGLE DAY. No, my periods weren’t as heavy, yes my pain was lessened, but the effects of this almost bought me to breaking point!
At this time mum decided enough was enough, she told me of a new doctor she’d spoken to, in fact broken down in front of and said he’d be willing to help, so to a new doctor I went. Some more pills and this time steroids to reverse or slow down the effects of the needle. But it was then my pain started inching back. I’d had my second ultrasound by then and way too many blood tests to count, but I was ‘fine’. I was referred to yet another specialist who was sweet, kind and fully understanding. He prescribed me yet another drug he almost guaranteed to help and we went away feeling somewhat accomplished, not knowing I’d be working as much as I could a week to be able to supply myself with such expensive medication. So we gave it a pass.
One late afternoon after we’d all got home from a trip to the city I threw myself onto mums bed and bawled I was experiencing so much pain. She was at wits end and called the hospital she worked at, explained she was bringing me in and when they asked which medication I’d tried she told them nothing today, nothing works. Truth. I got there, had some more medication and a lye down to wait for the doctor to come in, all with mum by my side. The most important thing from that night for me was not getting a painful needle in my butt that will forever keep me as far away from hospitals as possible, but hearing the sadness in mums voice as she explained my ‘condition’ to yet another doctor. I stopped listening to conversation after that.
It broke my heart so much hearing the hurt in her voice knowing she’d done so much and tried everything for me, I was willing to do anything to make it all go away, for both our sakes. This doctor promised small miracles. Weekly visits, a pain regime and a medication schedule that involved as little medication as possible. I have been taking them, I have been getting up myself everything 20 minutes to heat my own heat pack of refill my own hot water bottle and I have been trying my absolute hardest to attend every doctors appointment, even when it’s the last thing I ever want to be doing. I’m going to be honest and say I’m still in a lot of pain, daily. Pills and medications aren’t really working for me AT ALL and I’ve had days I do nothing but cry, I can’t bring myself to get up to go to the doctor and I the thought of going to work brings tears to my eyes.
I’ve just finished school and my aim always was to work work work and earn serious money, I’m currently working 5 days a week but feel like the most unreliable person ON THIS EARTH. I hate calling in sick. I hate standing there not being able to crack a smile to my customers because I’m in so much pain and I absolutely hate not having anyone understand what I’m going through. I was told because I’d had a laparoscopy, just because Endometriosis wasn’t found doesn’t mean I didn’t have it -and all the signs I have point to it. Endo is such a debilitating illness and is so hard to treat. I cry on behalf of all young women and ladies suffering, I know your pain. It is SO SO important to me that more is done not just to find a cure for this illness but to spread much needed awareness about this🎗
Thank you so much for taking the time to read my story, and I so look forward to reading more of yours and quietly smirking whilst I read in agreement with you all