Confessions of an Endometriosis Sufferer

MY LOVES

 

Its about time we become straight up and just say what we are all thinking right (lol)? So here I go, here at the most annoying, frustrating and honest things that float to my brain when I think of Endometriosis.

HERE ARE THE CONFESSIONS OF AN ENDOMETRIOSIS SUFFERER……

 

1. Stained Underwear

Yeah, sorry to get straight into it with the gorey details. However the amount of underwear ive had to handwash in the shower, or are to far gone and had to be thrown in the bin is so high I have lost count. Might I add it really sucks when I treat myself to a beautful sexy matching bra and undies set and after the first wear I have to bin them.

2. Constant STI/STD Checks

OK this one for me is a serious annoyance. The fact that I have probably had more check-ups than a sex worker (no hate) is absolutley ridiculous. Its even more frustrating when I explain that ‘I was literally tested a month or 2 ago and havnt had sex since then’ and still get poked and proded amazes me. Even more crazy is the fact me and my boyfriend were given pills to take for an STD even though we both tested negative more than ten times, but just in case we had to take them. I have endo, not a STD mate.

 

3. “OMG I get really bad period pains toooooo”

Look, I know you trying to be supportive or whatever by saying this however this one one of the most offensive things you can say to an endo sufferer. You may get severe period pains and that sucks, but the fact that you think endo is just period pains is frustraing. When you can hardly get out of bed for weeks on end, talk to me.

4. Greasy Hair and Hairy Legs

You know you are having a bad episode when even the thought of showering is draining let alone actually completing this task. So to say I literally get in and out would be quite a good description. My poor boyfriend putting up with my hairy body and my poor, poor cute outfits being let down by a greasy bun. Oh the joys of fatigue.

5. Paying for Pads and Tampons

This stuff is expensive, espically when you bleed for 6 weeks straight. Goverment listen up, fund ’em!

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6. When everyone you meet suddenly has the ‘answer to my prayers’

Im just not even gonna…….

 

 

7. “My Aunty had a baby and thats how she cured her Endometriosis”…..

First of all, CURE – LOL, second of all, whatever rock you live under, please remove yourself from it and educate yourself, Pregnancy doesn’t help everyone people!!!!!!!!!!!!!!!!

 

8. When the Staff in the Emergency Department think your a Drug addict

We all must have been here right? The funny looks, the whispers and stares, the “are you sure your really in pain hunny” chats. A common complaint from a lot of woman who deal with Endometriosis is they are made to feel like drug seekers. Seriously? Do you think I want to be lying in a cold, loud hospital wing on a Tuesday night at 1:13am instead of my warm cosy bed fast asleep? Do you really think if I had a choice I would like to be hooked up to a morphine drip filling myself with pharmaceutical crap?? NO I AM NOT SEEKING DRUGS! But I would really like them to help get rid of this pain so please come to your senses and realise I am in desperate need of your help and assist me in getting sane and comfortable enough to head home, thanks 🙂

 

9. The wheat bag is just never hot enough

Ok, how many of us have literally nearly burnt ourselves from frying our skin with an extra hot wheaty? (I imagine you are all raising your hands at this point) When the pains are so bad it is literally impossible to get your heat device hot enough to even slightly make the cramps bearable, there is so no saving you lol. 

 

10. “Does like, that mean you can’t ever have babies?”

Firstly, sit down you insensitive human. Secondly, my chances do become slimmer then normal, thanks for reminding me 🙂 isn’t it actually the worst when people don’t even think about how this question is going to make you feel? So cut throat it hurts.

 

11. Painsomina

100% is a thing. 100%. You are so sore, that you can’t even sleep. But you are so tired and exhausted from being in pain all day and you just wanna sleep. But you can’t, cos your in pain still and you cannot get comfortable no matter how hard you try or how many painkillers you take. You are just awake, dying a slow death whilst watching time slowllllllly tick by.

 

12. Explaining to your new partner what is wrong with you

Isn’t the “it sometimes hurts to have sex” convo literally the worst? Explaining to a male who has it drilled in his head that periods are even more taboo to talk about then the devil, that what Endometriosis is and how it effects you, ughhhhhh such a drag. I actually have now decided we should get like gold medals after having this conversation?

 

13. The initial convincing the doctors theres something wrong with you saga

Omg how did I nearly forget this one? THE ABSOLUTE WORST! Trying to convince a medical professional that your BODY HATESSSSSSS YOUUUUU and them not believing you for idk, like 8 years (using that number as its the average time a girl has to wait for a diagnosis) is so horrible. I remember the “take some pandadol, its just a bad period” chats like it was yesterday. You leave feeling so deflated and so mental

 

14. The after surgery gas

Haha k, I’m sorry, we have to discuss it. The first few days after surgery, and all that gas that they have pumped your tummy with is leaving your body, so embarrassing lol. You feel so un feminine and its so unacceptable. With no choice in the matter, “Pardon me” becomes your new favourite saying

 

15. When tired really, reallllly means TIRED

I literally hate it when I get to this point. When you actually have to put thought into picking up each leg when you walk. When simple tasks such as the dishes, folding the washing or brushing your goddam teeth feel like an olympic race. Once the fatigue takes over, the only thought I can concentrate on properly is getting myself to bed.

 

16. The bloating

You don’t know bloat until you have meet the Endo belly bloat right? Being that bloated sucks, especially when it means you can no longer eat your favourite chocolate unless you want to deal with the 4 month pregnant belly look. Even worse, looking pregnant when you run the possibility of never actually being able to be pregnant – can suck it.

 

17. Having your period, like all the time

SO many of us have been here – the never ending period. The waiting for it to finish and it never does. The loosing count of how long it has been since you didn’t have to change a tampon. The “OMG WHY WONT YOU GO AWAY” tears whilst sitting on the toilet unwrapping yet another night pad that will only last an hour because the flow is so heavy. Lets all have a moment of silence for all those who have been there, we deserve it.

 

18. You become your friends and families pharamcist

“So, can I take these two medications together?”

“You know that thing I got off you that time I felt nauseas, can I take some home with me?”

“I have a headache, do you have anything that will help?”

“Will I be fine if I take this without food?”

“How many of these can I take at once?”

 

19. Cramps

Its an obvious one, yet one that still needs to be addressed. How flipping sore are those cramps though? Cramps in your belly, cramps in your back, in your legs, in your actual vagina! Like enough is enough. However your body doesn’t understand that saying and just keeps throwing you cramps on cramps.

 

20. Calling in sick for work

Having to try and explain that periods are not an easy task for you and that you need to stay home in bed to your manager is not a fun or ideal task. Having them believe the severity of it can be so hard. Especially when you did this last week, and now you have the same problem and they can’t quite get their head around how you have your period again in such a small amount of time? Like when is ” I have my period and I have Endometriosis so leave me be” going to be an acceptable reason for a sick day? I vote it should be now.

 


 

Guys, honestly lol – I could sit up all night typing because the list seems to be never ending. Feel free to add “the confession you wanna make but never say” into the comments below – I can’t wait to see what you all have to add and what I’ve missed!

Hope you had a lil laugh relating to the above.

 

Love and light

A

xxx

 

 

3 thoughts on “Confessions of an Endometriosis Sufferer

  1. And all of the diet tips! And “try yoga” or whatever… I HAVE tried. It didn’t work, and now I am in so much pain that I can’t walk for more than 20 minutes at a time, so shut up! Everybody means well, but it isn’t helpful at all.

  2. My absolute favourite! hospital brings psych in, have you thought about your pain being psychological!! Like fuck! Seriously I wish they could feel what we feel just for an hour, I’m sure they’d rethink, like it literally feels like my vagina is being ripped out and my insides torn to shreds, not to mention the back pain and the pain spreading down my legs…

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